Resources
From Diagnosis to Treatment: Why Genetic Testing and Innovation Matter for ATTR Amyloidosis
Amyloidosis is a serious, rare disease caused by misfolded proteins that form amyloid deposits in tissues and organs. Greater awareness, early genetic testing and proactive screening can help shorten the diagnostic journey for individuals and families affected by ATTR amyloidosis.
Amyloidosis 101
Amyloidosis is a serious and often underdiagnosed rare disease that can cause permanent damage to the heart, nerves, kidneys and other organs.
How New Treatment Options for Amyloidosis Changed Giselle’s Life
When patient advocate Giselle Benmoin was diagnosed with hereditary ATTR amyloidosis, a rare, progressive disease that can affect the heart, treatment meant a four-hour infusion. Today, thanks to medical innovation, it takes a fifteen-minute doctor’s visit. “I’m able to get more of my life back,” she says. Now she’s working to raise awareness of amyloidosis, […]
Familial Hypercholesterolemia 101
Familial hypercholesterolemia, or FH, is a genetic disorder that raises low-density lipoprotein cholesterol levels from birth, increasing the risk of strokes or heart attacks.
Five Things To Know About the Medicare GLP-1 Bridge Program
Medicare launched the Medicare GLP-1 Bridge Program to help eligible beneficiaries pay for GLP-1 weight-loss medications. Under this program, eligible beneficiaries will pay a $50 flat fee per month, regardless of income. This program provides much-needed access for beneficiaries managing obesity and related cardiometabolic conditions.
The MINI Act: Advocacy Toolkit
A comprehensive resource to help patients, advocates, and partners raise awareness of the MINI Act and build support for policies that advance genetically targeted technologies and the next generation of medical innovation.
Atrial Fibrillation: Know the Signs, Know Your Pulse
Atrial fibrillation (AFib) is an irregular heart rhythm that can increase the risk of stroke and other heart complications. Learn the signs, understand your risk, and discover simple ways to check your pulse and take action for your heart health.
Nick and Jake’s Fight for Life-Changing Treatment Access
Nick and Jake both struggled to find an effective treatment to manage their obesity. Once they found a treatment that worked for them, health plans eventually stopped covering their medications. They hope that sharing their story will allow patients to access the innovative treatments they need.
Why Obesity Treatment Access Matters: Sarah’s Story
Sarah Baker found a treatment that helped manage her obesity, but insurance barriers prevented her from accessing the life-changing treatment she needed. In her testimonial, she encouraged policymakers to support the Treat and Reduce Obesity Act.
The Costly Side Effects of Switching Heart Patients’ Medications
Cardiovascular disease remains a leading cause of death in the United States. But patients who rely on specialty medications to keep their heart conditions under control now routinely see their care interrupted by insurance requirements. One common practice is known as non-medical switching.
How Knowing His Cholesterol Numbers Saved Niko’s Life
Niko Weddle discovered he had a major blockage in his arteries during a routine screening. Since then, he’s been sure to monitor his cholesterol numbers.