Amyloidosis

Amyloidosis is a serious, rare disease caused by misfolded proteins that form amyloid deposits in tissues and organs. Greater awareness, early genetic testing and proactive screening can help shorten the diagnostic journey for individuals and families affected by ATTR amyloidosis.

Amyloidosis is a serious and often underdiagnosed rare disease that can cause permanent damage to the heart, nerves, kidneys and other organs.

When patient advocate Giselle Benmoin was diagnosed with hereditary ATTR amyloidosis, a rare, progressive disease that can affect the heart, treatment meant a four-hour infusion. Today, thanks to medical innovation, it takes a fifteen-minute doctor’s visit. “I’m able to get more of my life back,” she says. Now she’s working to raise awareness of amyloidosis, […]

Patient advocate Ozzie Giglio was diagnosed with cardiac amyloidosis, a rare disease that causes the heart muscles to stiffen. But thanks to new advances in genetically targeted technologies, Ozzie can live a longer, healthier life.